Friends and family are organizing to raise money to promote awareness and fund research for a childhood disease that took the life of a Robinson child.
A group of local organizers are putting together a team to walk in the UMDF Energy for Life Walkathon in Evansville, Ind., on Saturday, May 10.
The walkathon is to raise money and awareness for Mitochondrial Disease. The team being put together locally is in the memory of Jaxon Sharma, the son of Dr. John and Amanda Sharma, Robinson.
In memory of their son, Jaxon, and to raise awareness about mitochondrial diseases, John and Amanda Sharma are participating in the United Mitochondrial Disease Foundation's (UMDF) Energy for Life Walk.
Jaxon Sharma was born on May 2, 2013, and one month later was diagnosed with Pearson's Syndrome, a rare type of mitochondrial disease. Jaxon required a Broviac line to be placed in his chest so he could receive blood transfusions twice a month.
"Jaxon, despite his health issues, was a brave and resilient boy who reminded us all of the power of a smile, even on the dark and dreary days. He taught us how to be strong during times of tremendous challenges. Jaxon's name means "warrior" - to which he lived up to, every day of his life. It is for him and his "warrior" spirit that we formed a team in his name and a walk in his name with hopes to eventually find a cure for mitochondrial diseases," wrote John and Amanda Sharma.
Mitochondria produce more than 90 percent of the body's energy. When these tiny parts of the cell can't do their job, the body doesn't get the energy it needs, resulting in a wide range of debilitating and sometimes fatal symptoms. Every 30 minutes, a child is born who will develop a mitochondrial disease by age 10. Each year, 1,000 to 4,000 children in the United States are born with a mitochondrial disease.
While exact numbers of children and adults suffering from mitochondrial disease are hard to determine, we now know the disease is approaching the frequency of childhood cancers. Many people who suffer from mitochondrial disease are frequently misdiagnosed due to a lack of specialists. This is why support is needed.
Through research, the medical world will one day have the resources to help children like Jaxon. Through the UMDF, money donated to this fund goes to research in Jaxon's name.
The Energy for Life Walk takes place on May 10, in Evansville, and Jaxon's Warriors currently has 32 team members traveling to Evansville for the walk.
The Sharma Family and team are selling "Jaxon's Warriors" wristbands for $2 with all proceeds going to United Mitochondrial Disease Foundation.
There is still time to join team Jaxon's Warriors and have fun while helping move one step closer to a cure. You can register as a walker or donate to the cause by going to: www.energyforlifewalk.org/evansville/jaxonswarriors
The Sharma Family will also be holding the first annual 5K Run/Walk and Little Warrior Fun Run in Jaxon's name on Sept. 20, in Robinson. Information about this event will be forthcoming.
If you have any questions about joining team Jaxon's Warriors, donating to the walk, or your business becoming a corporate sponsor for the 5k Run/Walk, you can contact the team at: email@example.com.